The union offers a unique opportunity to place increased hope on the horizon, by gaining knowledge of, discussing and funding prospective research projects that may soon lead to a cure. Many of these projects require immediate funding. IF you are a researcher looking for funding for a brain tumor research project, go to our MEMBERS list and contact one member - and pitch your idea to them. IF they like it, they will ask you to fill out an application and then propose it to the group for you! There are no deadline. We accept applications year round, get our board to approve them quickly, THEN work together here to find funding for projects that interest us.

There are 413 members, 71 of which are non profit organizations
(Scroll Down For List By State)
Markers:
= Individual or Organization with nonprofit status pending
= Non-profit Organization

Members: Non-profit Organizations

	LOCATION				ORGANIZATION				COMMENTS
	Thornhill, Ontario Canada				Tali's Fund 905-731-2324 http://www.taldoron.com				Re last question: We are part of the SickKids Foundation (ie. we do not have charitable status on our own... donations go to our Fund at SickKids)
	Milan, Italy				AITC - Associazione Italiana Tumori Cerebrali ONLUS 0039-347-830-6197 http://www.tumoricerebrali.it
	Madison, AL				I Could Be Your Child 256-216-8770 http://www.icouldbeyourchild.org				I Could Be Your Child has been organized to increase awareness of pediatric brain tumors (primarily dipg), provide funding for research and to provide support to children and families diagnosed with a pediatric brain tumor. I Could Be Your Child is a tax-exempt, 501(c)(3) organization.
	Scottsdale, Arizona				Students Supporting Brain Tumor Research 1-888-SSBTR-AZ http://www.SSBTR.org
	Sedona, AZ				Oligo Fund of Musella Foundation 928-203-4213 http://virtualtrials.com/oligofund/
	Encino, CA				Whole Child LA and Whole Child Foundation 310-908-7470 http://www.wholechildla.org				Our Fed. Tax ID # 20-3381529
	Granada Hills, CA				We Can, Pediatric Brain Tumor Network 3107393433 http://www.wecan.cc
	Napa, CA				The Tug McGraw Foundation 7072551884 http://www.tugmcgraw.org
	San Diego, CA				San Diego Brain Tumor Foundation 619-515-9908 http://www.sdbtf.org				Mission Statement To support the Brain Tumor Community – patients and their families – by providing direct assistance with day-to-day social and medical needs. The Goal of the Foundation To be a local presence in San Diego, where we can make a difference in the brain tumor community supporting patients and their families.
	San Francisco, CA				National Brain Tumor Society 4152599350 http://www.braintumor.org
	Santa Monica, CA				UCLA Department of Neurosurgery (310) 825-5111 http://www.neurosurgery.ucla.edu
	Moreno Valley, California				The Man in the mirror The Ricky Gutierrez Brain Tumor Foundation 9514136319
	US Air Force Academy, CO				Rachael's Ribbons of Hope Foundation 301-237-6186 http://www.rachaelsribbonsofhope.org				Rachael's Ribbons of Hope Foundation is founded by family and friends of Rachael Newton. Our Mission is to raise funds for brain tumor research and heighten public awareness of this devastating disease in the hopes of finding a cure.Rachael is my daughter and I feel blessed to have had a daughter like her, she is missed more everyday. I wish she was here to help us with this foundation but I know that she is in Heaven. My hopes are to help other children and parents so that they have more time with their families. No parent should lose their child!We are partnered with the Brain Tumor Institute at Children's National Medical Center in Washington D.C. where Rachael was treated.Rachael passed away March 8, 2007 at the age of 14, but her dream was to help others that are stricken by brain tumors and we are continuing that dream in her memory.We started this foundation in November 2007 and have received our 501.c.3 status as a public non profit organization.
	Clearwater, Fl				Miles For Hope 727-647-6548 http://MilesForHope.org				"Moving Towards A Cure" - Miles for Hope was established by Bob & Barb Gibbs to raise funds for promising brain tumor clinical trials and research.  We are dedicated to raising funds to improve current treatments for brain tumors, and to assist brain tumor patients with travel expenses for their treatment.  Our goal at Miles for Hope is to provide a complete source for cutting edge treatment and support for both the patient and care givers.  There are many wonderful sources of information on the internet for brain tumors, and our goal is to compile these resources at one location.  Here you will find a large support forum full of information, the most current clinical trial information, breaking news regarding brain tumors, and other support and awareness tools for your use in combating and fighting brain tumors. Our goal is to have our forums monitored and frequented by some of the leading professionals in the brain tumor community.  These will include neuro-surgeons, neuro-oncologists and neuro-psychologists.  Please support us in our efforts.  Help us support those who are affected by brain tumors, and fund current research leading to a cure for this disease.
	Coral Springs, FL				Florida Brain Tumor Association 954-755-4307 http://www.fbta.info				OUR MISSION To provide hope,support and education to brain tumor survivors and their families To conquer brain tumors by funding research into their causes and cures To enrich the quality of life of those touched by brain tumors The FBTA has become a major force in the brain tumor community. We have hosted many 3 days conferences,seminars meetings, attracting thousands of survivors, families friends health care professionals in the US Canada. We are proud to have the most renown presenters in the brain tumor community travel to FBTA conferences from across the country. The next FBTA conference is Jan. 23-25,2009, West Palm Beach FL, Marriott Hotel-More info: www.fbta.info
	Viera, FL				Just One More Day for Love, Hope & a Cure 321-698-8538 http://www.JustOneMoreDay.org				Just One More Dayis committed to increasing awareness about diffuse intrinsic pontine gliomas, funding research, and providing information for the families of children who are living with this type of cancer.
	Zephyrhills, FL				Brain Tumor Action Network 858.720.1787 http://btan.org				The Brain Tumor Action Network is a not-for-profit 501(c)(3) organization established to bring awareness to the general public about brain tumors and to educate and empower brain tumor survivors, their families and friends. We foster grassroots advocacy on federal and state legislative issues affecting brain tumor survivors, their families and friends by proviing information on brain tumor-related public issues and effective advocacy.
	Ponte Vedra Beach, Florida				Nicki Leach Foundation 904-280-8916 www.nickileach.org
	Douglasville, GA				The Charles Warren Brain Tumor Awareness Foundation, Inc. 770-942-0639 http://www.charleswarrenfoundation.org				Thank you so much for contacting us concerning the UFAB. As I have tried to figure a way to increase the awareness of brain tumors, I have often considered that the only way we will ever be truly successful is if we could somehow combine forces with these large, super organized groups. Now we can and I am very excited! Please let me know how we can be involved. We will place a link to your organization on our website as well as a note about the movement.
	Chicago, IL				Imerman Angels 877.274.5529 http://www.imermanangels.org				Imerman Angels is an organization providing one-on-one cancer support: connecting cancer fighters, survivors and caregivers. Imerman Angels partners a person fighting cancer with someone who has beaten the same type of cancer. One-on-one relationships give a fighter the chance to ask personal questions and get support from someone who is uniquely familiar with their experience. The service is absolutely free and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world.
	Des Plaines, Il				LAAF - Lori Arquilla Andersen Foundation 904-334-0124 / 847-561-1199 http://www.laafinc.org				Visit: www.youtube.com/laafinc and www.laafinc.org/lori-erik LAAF was founded in memory of Lori Arquilla Andersen by her mother, Linda Magiera IL, and her sister, Lisa Dodge FL; to fulfill her wishes of making a difference in the lives of other brain cancer patients. We are a 501c3 not for profit public charity and donations made are tax deductible. Lori Arquilla Andersen, a Chicago area native, was diagnosed in 2003 with the worst type of brain cancer (GBM grade IV) just 3 months after her marriage. She fought a courageous 22 month battle and was able to remain positive until the very end. She lost her battle on 7-5-05 at the young age of 35. Even on Lori's toughest days, her smile and laughter would shine through and inspire those around her. We continue Lori's journey in hopes of finding a cure. Read about Lori's journey with brain cancer: www.laafinc.org/lorierik/ Get to know Lori by viewing the video: live, love, laaf! at www.youtube.com/laafinc ; and please pass it along to everyone you know. The Lori Arquilla Andersen Foundation for Brain Cancer Awareness is promoting awareness of the life threatening effects of brain tumors, advocating on behalf of brain cancer patients and raising funds for medical research. LAAF is dedicated to making a difference towards finding a cure. ** PLEASE contact us if you are able to have a fundraiser in your town for LAAF. Proceeds will benefit LAAF awareness and patient programs, advocacy efforts and the Brain Tumor Research Fund at Northwestern University. We are currently working on a pilot program to offer financial aid to brain tumor patients and their families to help with the cost of treatments, living expenses, the high out of pocket expenses, etc... When this program is fully funded we will be able to implement it into the community. LAAF works closely with Dr. Jeffrey Raizer, Director of Medical Neuro-Oncology at the Northwestern University Feinberg School of Medicine; he is the administrator of the BRAIN TUMOR RESEARCH FUND. In May 2008, they are launching the Brain Tumor Institute. For the past 2 years LAAF has been working closely with Congress and was instrumental in introducing a resolution to make the month of MAY: National Brain Tumor Awareness Month. LAAF was also invited to speak at a Congressional briefing on that resolution in May 2008 in Washington D.C. Thanks to the collaboration between LAAF and Congresswomen Schakowsky the resolution has finally been passed! We now have the awareness we were so desperately seeking for the brain tumor community. Please see the Congresswoman's speech on CSPAN. go to - http://youtube.com/laafinc Thanks for your support!
	Lake Forest, IL				Benny's World 847-612-5567 http://www.bennysworld.org
	Dubuque, Iowa				Grey Ribbon Crusade 563-599-4498
	Benton, Kentucky				Gunner's Magic Train Pediatric Cancer Foundation 270-527-6500 http://www.gunnersmagictrain.org				Gunner, my 8 year old son passed away October 23, 2008 from a brain tumor (DIPG). I want to make a difference with his organization so I am proud to unite and fight!
	Brookline, MA				Neil C. Harrington Sr. Memorial Fund 617-319-1996 neilharringtonmemorialfund.com
	Germantown, MD				Childhood Brain Tumor Foundation 877-217-4166 http://www.childhoodbraintumor.org
	Salisbury, MD				HOPE With Support, Inc. 410-443-1342 http://www.hopewithsupport.org				HOPE With Support's grey ribbon carries a daisy for HOPE; HOPE for
	Holland, MI				Unlocking Brain Tumors, Inc (616) 335-9050 http://unlockingbraintumors.org				UnlockingBrainTumors.org was launched in September 2007 by Stephen Coffman, a former business leader who left the human resources marketplace after being diagnosed with cancer and was subsequently diagnosed with a brain tumor. Money raised by UnlockingBrainTumors.org is directed toward novel brain tumor research, exciting novel treatment targets and improved treatment choices; all funds raised are allocated in streamlined fashion, using existing channels and foundations with the goal of distributing money quickly and fairly, to those who can operationalize it quickly, and who limit their overhead to make more money available for research and treatment. UnlockingBrainTumors.org is a registered 501(c)3 public charity, and to date the organization has directly raised or assisted in the raising of over $100,000 to be dedicated toward brain tumor research. We are committed to giving at least 90% (or 100% as directed) of donated funds .
	Jackson, Mi				Another Day Another Memory (A.D.A.M.) 5179149556 http://www.adamupdate.com				We started a grief support organization for parents that have lost a child and a sibling that have lost a loved one. We did this in memory of our son, Adam who had dipg.
	Midland, MI				Walk For Kate 989-600-1745 www.walkforkate.org
	Kansas City, Missouri				Head for the Cure Foundation 816-218-2890 http://www.headforthecure.org
	Raleigh Durham, NC				Preston Robert Tisch Brain Tumor Center http://www.cancer.duke.edu/btc/
	Omaha, NE				Leap-for-a-Cure 402-333-9370 http://www.leapforacure.org				Locally, Leap-for-a-Cure promotes Brain Cancer Awareness in Omaha, NE. Nationally, LFAC wants to support efforts for more funding and research so that futures are bright, families have hope, and patients are cured. LFAC also promotes wearing gray for awarenss and hope. No one should hear the words "brain cancer" and feel there is little to no hope.
	Morristown, New Jersey				Have A Chance Inc. 973-895-2247 http://www.haveachance.org
	New York, New York				Cristian Rivera Foundation 212-779-2222 http://www.cristianriverafoundation.org
	Oceanport, NJ				The Kortney Rose Foundation (732)222-1491 http://www.thekortneyrosefoundation.org				I believe that in the long run if all of us band together where legislation is concerned we will make a larger impact. This is great! Please keep your grey ribbon as I already have one and would rather have you give one to someone who doesn't. Thanks, Kristen Gillette
	Roseland, NJ				Peter A Bednarski Fund for Brain Tumor Research Inc 973-403-8306
	Wall, NJ				Monmouth and Ocean County Brain tumor Support Group 609-914-1590 http://www.njbt.org				The Monmouth and Ocean County Brain Tumor Support Group, Inc. exists to provide support and information to those affected by any type of brain tumor.
	Las Vegas, NV				C.E.V.A.N. Louie Foundation for Brain Cancer 415-793-6196 http://www.cevanlouiefoundation.com/
	Buffalo, NY				Roswell Park Cancer Institute 716-845-8850 http://www.roswellpark.org
	Chappaqua, NY				Pediatric Low Grade Astrocytoma Foundation 914-762-3494 http://www.fightplga.org				Finding kinder/gentler treatments and a cure for all forms of pediatric low grade astrocytoma (plga) is the central mission for the PLGA Foundation. To do so, we need to raise not only funds, but also awareness about the devestation that these brain tumors can bring to their young victims. Researchers are beginning to take notice of our efforts, and we will continue to try to attract the best and brightest in the medical field to study our disease.
	Hewlett, NY				Grey Ribbon Crusade 888-295-4740 http://greyribboncrusade.org				We are under the Musella Foundation's 501(c)(3)
	Hewlett, NY				Musella Foundation For Brain Tumor Research & Information, Inc 5162954740 http://virtualtrials.com				The Musella Foundation raises funds for research and provides education and support to families dealing with all types of brain tumors: Adult / Pediatric, common and rare, Malignant and benign as well as metastatic. We are a 501(c)(3) nonprofit public charity and willing to work with anyone to help speed up the search for the cure!
	New York, NY				Voices Against Brain Cancer 516 633 0800 http://www.voicesagainstbraincancer.org
	Warwick, ny				Michael A. DiCarlo Brain Tumor Foundation 845-981-7020 http://				website and logo are being developed. We are a Charitable Foundation through Fidelity Charitable Giving Program.
	Avon Lake, OH				Smiles For Sophie Forever 440 930-5091 http://www.smilesforsophieforever.org/				In February of 2007 Sophie Elizabeth Quayle, at age three, was diagnosed with a diffuse intrinsic pontine glioma (DIPG) - a cancerous brain tumor. This type of tumor is located in the brainstem, at the base of the brain. Affecting primarily children, it is the rarest and worst of pediatric brain tumors. Approximately 150 to 200 children are diagnosed each year. This type of tumor is considered terminal, and survival time is typically nine to twelve months following diagnosis. Sophie's parents, Marc and Emily Quayle of Avon Lake, felt an overwhelming sense of helplessness when learning there was nothing the doctors could do to save Sophie's precious life. Sophie passed away October 6, 2007, just seven and a half months after diagnosis. This great despair and frustration lead Marc and Emily on a mission to help children and families suffering from DIPG, while raising awareness and money that will lead to a cure for this awful disease and other types of pediatric brain cancer. Our Mission: The mission of Smiles For Sophie Forever* - A Foundation Confronting Pediatric Brain Cancer is threefold: - to provide financial and emotional support to families burdened by pediatric brain tumors - to promote a global awareness of not only pediatric brain tumors, but also an awareness of the lack of funding allocated for pediatric brain cancer research; and - to provide financial support to St. Jude, where Sophie was treated, and to other viable organizations committed to the treatment and cure of pediatric brain cancer. * Smiles For Sophie Forever is a tax-exempt, 501 (c)(3) organization.
	Boardman, OH				Tommy Detesco Fund for Adolescents and Young Adults 330-729-9228 http://www.tommydetescofund.com				The Tommy Detesco Fund is meant to address those individuals living with brain tumors during adolescence and young adulthood. Tommy was my brother, and he lived with brain tumors from his first surgery at age six until his death 8/31/2007 at the age of thirty-two. His story is inspirational and gives others hope to never give up for a cure!
	Cincinnati, OH				Cure Starts Now 513-478-8990 http://www.thecurestartsnow.org				The Cure Starts Now Foundation is an IRS 501C non-profit charity dedicated to educating, aiding and funding the search for a cure for brainstem glioma and other forms of pediatric brain cancer in the hopes of curing all cancers. Our fight begins with the children, typically ages 5-7, who are most commonly afflicted with this debilitating disease. Their prognosis is considered "dismal" by cancer experts with less than 1-10% of all confirmed victims living beyond 18 months from diagnosis. Sparing their cognitive abilities, brainstem glioma slowly robs children of their motor functions resulting in partial paralysis, loss of voice and sight and finally ending with an inability to eat and breath. It is both heart wrenching and painful as they are fully aware of their decline often until their last day. The cure starts now...
	Columbus, OH				Ohio State University Medical Center 6142922177 http://medicalcenter.osu.edu/
	Lancaster, OH				Kevin Mullin Memorial Fund for Brain Tumor Research 740-756-7987 http://www.lemonhead.org				We started Kevin's Fund just 6 months after he lost his battle with a malignant brain tumor. Kevin was a cross country runner in high school and his team would participate in the Race for the cure. After he was diagnosed with the brain tumor he still wanted to do the race for the cure. He could no longer run or see very well but in May of 2001he and his mom walked the 5K and Kevin commented that he wished all the people participating that day were doing it for brain tumor research. When he lost his battle in August of 2001 his family vowed to make his wish come true and the first Kevin Mullin Memorial 5K run/walk took place in April of 2002 and $20,000 + was raised that day. Thus far after 9 events we have raised almost $200,000 for brain tumor research and awareness. Kevin had so much hope that a cure would be found and our family will continue this fight until that hope becomes a reality.
	South Euclid, OH				Mission4Maureen 440- 840-6497 http://www.mission4maureen.com				No one can do everything, but everyone can do something. When the announcement was made that Senator Edward Kennedy had brain cancer it seemed that the whole world paid attention. Every news agency and newspaper led with that headline and stories flooded the internet. As a result, the Mission4Maureen website received over 26,000 hits over the past 4 months. Many letters of inquiry have been received and of course the stories are both sad and familiar. Most letters were followed by applications for assistance. Mission4Maureen intends to assist all who qualify but we need help. Currently there are 18 applicants and while not all patients agree to make their stories public, they share one identical message. They are grateful that there is a charity like Mission4Maureen to whom they can turn for help. In order to help all these patients, Mission4Maureen needs to raise $32,000. Kennedy's brain cancer brought needed light to the plight of brain cancer patients. Please help us to help them. Donation checks made out to Mission4Maureen may be sent to PO Box 21602, South Euclid, OH 44121. Our current fundraiser is 2008 - 2009 Annual Fund. See our website at Mission4Maureen for details.
	West Chester, OH				Lifestream for Kids 513-787-7084 http://www.lifestreamforkids.com
	Oklahoma City, OK				Oklahoma Brain Tumor Foundation 405-843-4673 http://www.okbtf.org
	Ambler, PA				Wylie's Day Foundation 215.643.2181 http://www.wyliesday.org				Wylie's Day Foundation was created in 2005. Wylie Strotbeck was 11 years old when diagnosed with a medulloblastoma. He was optimistic and the bravest hero we ever knew. His wish was to be normal and someday have a family. His battle ended 16 mos. after diagnosis. There were no available treatments left after having tried everything the best institutions and the best docs had to offer. Our mission is to fund cutting edge research towards a cure for pediatric brain tumors. No child should have to suffer this devastating disease and most difficult journey. We strive for the DAY that a cure can be found. We also fund child life oncology programs.
	Easton, PA				Lauren's First and Goal Foundation 610-250-6981 http://www.laurensfirstandgoal.org				Lauren's First and Goal is a charitable organization created to raise funds to support pediatric brain tumor research, support local pediatric cancer services, provide financial assistance to families living with a pediatric cancer diagnosis and to raise public awareness regarding pediatric brain tumors. The fund is supported primarily by Lauren's First and Goal Football Camp, a non-contact, one day instructional clinic taught by experienced Division I, II and III college coaches. In addition to the original camp hosted by Lafayette College in Easton, PA, the foundation branched out to The University of South Florida in 2008 to run Lauren's First and Goal South. The PA camp drew over 1600 players from across the northeastern states. Over 300 players attended the inaugural event in Tampa. In all, over 300 college coaches volunteered their time and helped raise over $255,000 for Lauren's First and Goal Foundation. Since the Foundation's inception five years ago, over 5,300 high school players have attended the camp and over half a million dollars has been raised to support research towards a cure for pediatric brain tumors. The camp and organization are named in honor of Lauren Loose, an eleven year old brain tumor survivor, who has been living with a diagnosis of multiple brain and spinal cord tumors, Neurofibromatosis and Evan's Syndrome since 9 months of age. Her courage, relentless spirit and joy for life are an inspiration to those who know her. It is our hope that through Lauren's example, we can help to improve the lives of other children and families dealing with pediatric cancer.The Foundation has 501c3 tax exempt status approval from the IRS, which allows for tax deductible contributions to Lauren's First and Goal.
	Lafayette Hill, Pa				Kyle Daniel Kerpan Foundation 215-402-9371 http://www.caringbridge.org/pa/kyledkerpan				The Kyle Daniel Kerpan Foundation is named for, and has been formed in memory of our son, Kyle. Kyle battled brain tumors and related disease symptoms from diagnosis at age two until he lost his battle and passed away at the age of 11. During the time after his diagnosis, my husband, myself and Kyle’s twin sister Tessa fought that battle along with him. What we learned from personal experience in working with Kyle and other patients, families and friends of patients and the medical community shapes this Foundation and the activities that will be its focus. Our goal is to take what we have learned and, working with others, use this knowledge and experience to enrich and enhance the quality of life of other pediatric brain tumor patients and their families. It is dedicated to a very brave little boy that so loved his life and fought so hard to keep it…
	Oakdale, PA				Samuel J Foundation 724-693-9901 http://www.samuelj.org/				the Samuel J Foundation was founded in memory of Samuel Jacob Johnson who died from a brain tumor in November 2003 at age 3. The Foundation’s mission is to give children with brain tumors hope for a cure, bring smiles into the lives of children with all types of pediatric cancers and their families, and support the needs of children with developmental disabilities. The Foundation’s current programs include a pediatric brain tumor fund that has been used to support brain tumor research at Children’s Hospital of Pittsburgh, as well as a snack cart for parents and children on the inpatient oncology unit at Children’s Hospital of Pittsburgh. The Foundation has also sponsored two wishes for children with brain tumors through the Make A Wish Foundation, and has made donations to The Early Learning Institute of Pittsburgh to support the needs of young children with developmental disabilities.
	Philadelphia, PA				University of Pennsylvania Department of Neurosurgery 215-615-4379 http://www.uphs.upenn.edu/neurosurgery/
	Scranton, Pennsylvania				Aimee's Army 570-687-4480 http://www.aimeesarmy.com				May be interested in co-funding future research projects.
	Providence, Rhode Island				Rhode Island Brain & Spine Tumor Foundation 401-272-4177 http://www.ribstf.org				The Rhode Island Brain & Spine Tumor Foundation is committed to increasing awareness in our state about brain and spine tumors, to assisting patients, their loved ones and caregivers with information and support, and to developing more resources for patient care and research. Please feel free to contact us whether your life has been affected by a brain or spine tumor or you would like to join our cause.
	Marietta, SC				The Brain Tumor Awareness Organization 864-836-4609 http://www.braintumorawareness.org				We are excited to be apart of this movement. Together we can make an impact! We are engaged in raising awareness in South Carolina, providing a single source web site of information and support so that everyone that is affected by this disease will find or contribute to the support in their communities.
	Porter, Texas				Children's Brain Tumor Research Foundation 832-723-2605 http://www.cbtrf.org				Children’s BrainTumor Research Foundation is a 501(c)3 nonprofit organization dedicated to the education, research,and awareness surrounding rare types of childhood brain tumors.CBTRF provides a forum for families of children with cancer to learn more about these rare types of tumors, and promotes open dialogue between parents, doctors, and researchers worldwide in an effort to find a cure. In addition, we seek to identify and fund novel treatments for childhood brain tumors.
	Carrollton, TX				The Nick Gonzales Foundation for Brain Tumor Research 469-438-7001 http://www.nickgonzalesfoundation.org				The Nick Gonzales Foundation for Brain Tumor Research funds an annual research grant through the National Brain Tumor Foundation, www.braintumor.org. The 2008 Nick Gonzales Research Grant of $50,000 was awarded to M.D. Anderson Cancer Center on June 20, 2008. Please visit our website for upcoming fundraising events and the 2nd Annual Nick Gonzales Charity Golf Tournament scheduled for May 8, 2009 in Flower Mound, TX (just north of DFW Airport).
	Houston, TX				Dr. Marnie Rose Foundation 713-993-9288 http://www.RunfortheRose.com				Marnie was a bright, beautiful, vivacious second-year pediatric resident when she died in 2002 of a glioblastoma. She appeared on the nationally acclaimed ABC television series Houston Medical to put a human face to brain cancer and to give strength to others who were ill. During Marnie's illness, we were appalled by the limited funding for brain tumor research and the lack of awareness of its incidence, especially among young adults. We started the Dr. Marnie Rose Foundation after her death to address these issues and to remember the children Marnie so adored. Our annual Run for the Rose and Ridin' for the Rose, a motorcycle rally, have netted over $1,100,000.00. At M. D. Anderson Cancer Center, we have funded cutting-edge immunotherapy research and have watched it extend the lives of patients. We are so thrilled when these same patients participate in our Run and Ride. We also fund new drug development and the growing field of personalized medicine, with the goal of rapid translation to clinical trials. This research is especially important because these treatments stand to benefit all cancer patients. At Children's Memorial Hermann Hospital, where Marnie was a resident, funds are designated for the development of the Pediatric Neuroscience Center, which treats children with brain tumors. Please join us for the 7th Annual Run for the Rose on Sunday, March 29, 2009. Check out our web site, www.RunfortheRose.com, forthe dates of the Ride and our new Rose Pedal, a bicycle ride for families. Our events bring together patients and families for support and camaraderie and empowerment.
	Ashburn, VA				The Brad Kaminsky Foundation for Brain Tumor Research 7037299897 http://tbkf.org				The Brad Kaminsky Foundation is dedicated to Raising Awareness of Brain Tumors and Funds for Research so that Effective Treatments and Ultimately, A CURE, may be found. We are also dedicated to providing support and resources to those affected by this horrible disease, and will work with other organizations for the betterment of all patients and families so as to bring about a cure as quickly as possible.
	Ashland, VA				Brown Bag For A Cure (804) 296-4590 http://brownbagforacure.org				Brown Bag For A Cure ....is a simple, unique that supports pediatric brain tumor research...Brown Bag your lunch and donate what you would have spent on lunch out. Our 501 (c) (3) status is pending.
	Crozet, VA				Lou Beeler Foundation 434-823-2848 http://www.beelerfoundation.org
	Glen Allen, VA				Brain Tumor Resource And Information Network 1-800-900-6195 code 48 http://www.brainsite.org				HI Everyone: Glad to become a member. We do have a logo, but had difficulty putting it on your browser. Please let me know how to do this. We established our all volunteer non-profit charity in 2005 to improve the quality of life of brain tumor patients, increase public awareness, and raise funds to aid in the research to eliminate the disease. We provide information packages to newly diagnosed patients and have given out more than 500 in the Richmond, VA area to date. I was diagnosed in May of 2003 with an Oligo-Astocytoma, Grade 2. I go to the Preston Robert Tisch Brain Tumor Center for Treatment. I am a member of the Society of Neuro-oncology and attend all annual and world conferences. We are members of the International Brain Tumor Alliance, a fantastic organization. See www.theibta. Collectively, I know we can raise enough money to find a cure. With love, prayers, and Hope, Marguerite Sciuk President/Founder/Brain Tumor Survivor
	Vienna, VA				The Brian Bedell 2-Young Foundation 302-737-5341 http://www.2yf.org				Quite simply, our mission is to help find a cure for brain cancer. The Brian Bedell 2-Young Foundation will be a positive force for other patients dealing with a brain tumor diagnosis and strive to help the patient and their families deal with this formidable opponent. We will increase public awareness of brain cancer and will help to raise crucial funds needed to find effective treatments and one day a cure for brain cancer.
	Maple Valley, WA				The Chris Elliott Fund 253 266 0009 http://www.chriselliottfund.org
	Casper, Wyoming				Brain Injury Association of Wyoming 307-473-1767 http://www.biausa.org/Wyoming				We provide local support groups, a lending library, newsletters, and other services to people living in Wyoming with the effects of brain injury.

 

Members: Individuals

	LOCATION				NAME				COMMENTS
	london , nonn AFRICA				Sherri Cooper 8506151418 http://www.lowest-rate-loans.com
	london , nonn AFRICA				Socorro Robertson 850-615-1418 http://www.lowest-rate-loans.com
	Mamfe, Cameroon				Dr Enoh Nkongho 9-7-2-5-4-2-8-4-6-8-0-9				I am a neurosyrgeon in training and a painter. I have been training in Israel for 3 and a half years and will move to Tanzania in July 2010 to continue the training. I wish to open up a neurosurgical center in my country after I finish my taining. This center will take care of patients, especially children with brain tumors. I wish to join your organization in the fight against brain tumors. Please, tell me how we can raise funds for this fight by selling some of my paintings. God bless
	Chilliwack, BC Canada				Kathleen De Graw 604-824-8900
	Nelson, BC Canada				Megan Moore 1 250 352 5948
	Toronto, Ontario Canada				Larry Ellerton 416-686-9792
	Clonakilty, Co. Cork Ireland				Sean Allis 00-353-23-8833077
	dublin, ireland ireland				patricia mccolgan 35318423463				i'm Rory's mom (dx sPNET bt in April 08 and doing well).
	Lucena City, Philippines				Rolynda Agnes de los Angeles (063) 042-3731483
	mankayan/baguio, benguet philippines				benjie bayanes 09217385262
	Worcester, UK				Rosie Shearburn 00 44 1905 21465				I am a proud survivor of a 8.5 hour operation to (mostly) remove a trigeminal schwannoma of 3.6cm diameter on 22nd August 09, in Birmingham, UK. I am sure that the fact that I am relatively unscathed and that I am doing so well is due to the extreme skill of the neurosurgeon. The stories on this website are so inspirational.
	GUERNSEY, CHANNEL ISLANDS UK				ALFIA DANCE +44(0)1481 833022
	Uckfield, East Sussex UK				Natalya Jagger 05601 751226 http://www.btbuddies.org.uk				I run BT Buddies which is dedicated to providing information and support to high grade brain tumour patients, their families, friends and caregivers living in the UK. I am not a registered charity but an avid believer that there is ALWAYS hope.
	Cheadle Hulme, Cheshire United Kingdom				Katie Sheen 0161 221 1320 http://www.astrofund.org.uk				Astro Fund offers information, inspiration and hope to those living with a low-grade brain tumour
	bellaire, OH United States				angelique parker 740-310-8015
	Arlington, VA United States				Emre Ilter 202-756-8395
	Haymarket,, VA United States				Sheryl Winkler 571-261-3499
	Burlington, VT United States				Kristin Albee 802-999-9679
	,				Heide Randall http://caringbridge.org/visit/jessicarandall				I think this is wonderful. Thank you so much for doing this, and I wish you all the best!!! I have been brainstorming about brain tumor-specific fundraisers, and you will be one of the FIRST I notify when I come up with one, and decide what I'm doing! :)
	Jeffersonville,				Dana DiCaprio 610-564-1674
	North Kingstown,				Leslie Gunther 401.323.5590
	Simi Valley,				Eleni Miller 805-577-1173
	Woburn,				Anna Demers 781-938-7211				I am a 8 survivor
	Juneau, AK				Kay Diebels 907-789-7586
	Grove Hill, AL				Sharon Harrell				My husband lost his fight against a brain tumor in March 2008.
	HUNTSVILLE, AL				SHIRLEY LOTZ
	madison, al.				allyce schneider 2566738656 carebridge.com
	Goshen, Alabama				Rhonda Miley 334-484-3486				lost my daddy this year to a glioma
	Montgomery, Alabama				Jennifer Murphy 334-356-0031
	Oneonta, Alabama				Glenn Miller 205-274-9958
	Oneonta, Alabama				Terra Tyler 205-274-9958				I lost my soul mate and partner of 10 yrs to metastatic malignant tumors(Melanoma) of the brain. I have vowed not to let his death be in vain and we are working to establish the Glenn Alan Miller Memorial fund in hopes to provide scholarships to future students of research and science in the hopes of one day finding a cure.
	Benton, AR				Theresa Marley 501-309-3549
	Bentonville, AR				Julie Witte, J.D. 479-254-8199
	Greenwood, AR				Krista Elmore 479-650-3427
	Hot Springs, AR				Nicole Crowe 5016203668
	scottsdale, arizona				talisa carter 4057620201
	Chandler, AZ				Karen Kuzmovich
	Gilbert, AZ				Jackie Pilla, M.Ed. 602-614-5478				I am a brain tumor survivor and had successful surgery to remove a meningioma in November 2007! I have been volunteering for a nonprofit bt organization and will forward this information to them to ensure they know about it.
	Goodyear, AZ				Patty Petersen 602-505-4584
	Laveen, AZ				Mike Sinclair 217-725-7349				I'm a recently retired health physicist diagnosed with astrocytoma and being treated with chemo at Barrow Neuro Institute at St. Joseph's Medical Center in Phoenix.
	Denver , C)				Cindi Rixey Scott 303 322 8914				Keep on getting louder.
	Anaheim, ca				Chrisitne Cortez 714-833-5047
	Boulder Creek , CA				rex scates 831-338-8354				I have a oliodendroglioma right frontal lobe.. Diagnosed Nov-1 2007, Did not do surgery just a biopsy. On temodar and MRI's are looking better each time.Some behavioral changes.
	Cerritos, CA				Merry Arrogante 562 402 4546
	Chula Vista, CA				Joevert Gangoso 8587173648 http://www.nesianclothing.com
	Corona, CA				Denise Rager 951-278-9003 http://www.christandcancer.org				We are a new charity. We have applied for 501C3 status, still waiting on the government. We are incorporated as a non profit in the state of California. I will update as soon as we get official status.
	Davis, CA				Tom Hinds 530-400-7087
	Folsom, CA				Pam Quillin 916-316-1610				Brain tumor survivor (oligodendroglioma) since 1993; 3 craniotomies, 6 weeks radiation, 1 year chemo, enough MRI's to stick to a refrigerator. Still kicking
	Gilroy, CA				Gloria MacVicar 408 842-1542
	LA, CA				Laura Baker 310.904.3128
	Los Angeles, CA				Bryan Prado 323-230-0088				On January 9, 2007 I survived a 14 hour surgery for a benign trigeminal schwannoma. They said I had it close to 10-15 years and it was the size of a golf ball. Albeit, my experience may not be as fatal as others but I was deathly afraid of the outcome. But I had some great doctors at UCLA Medical who had the most amazing bed side manner and took the utmost care when providing me with the help I needed. I am thankful to them and want to see Heroes of Hope succeed in their endeavors. I look forward this years 2nd Annual Race for Research which I plan on making an annual mecca event for myself.
	Placentia, CA				Nick Dempkowski 714-333-7272				my dad has a golf ballsized tumor on the left lobe of his brain... half way done with radiation.. just started chemo... speech probs and vision and memory probs. just trying to get some info -Nick Dempkowski
	Placerville, CA				Tanya Perez 5303062686
	Playa Vista , CA				Marissa Chavez				My grandma lost her fight on October 26, 2008 to a stage IV GBM. Fight for the cure!
	Portola Valley, , CA				Bret Bocook 650-387-1903 http://www.angelscamponline.com				You can get a logo from my website: www.angelscamponline.com
	Redondo Beach, CA				Todd Harris 310-779-7144				I lost my mother on January 1, 2007 after an eighteen month battle against GBM. She was 63. I am dedicated to spreading awareness about this disease. Thank you for starting the cause!
	Redwood City, CA				Terry and Carol LeMar 650-533-1563
	Sacramento, Ca				Juana Rodriguez 916-995-6944
	San Diego, CA				Kathleen Bell 858.720.1787 http://stevenbell.blogspot.com				I lost my 4-year old niece to an inoperable brainstem anaplastic astrocytoma. My son was diagnosed 5 years ago with a primitive neuroectodermal tumor (PNET) in his right frontal lobe.
	San Francisco, CA				Henry Liu 4155054303				Thank you
	San Luis Obispo, CA				Ashley Cash 760-900-3465
	Santa Ana, CA				Brittany Kuskie 714-742-9590 http://myspace.com/bkuskie
	Santa Barbara, CA				Samantha McVee 3606213744 http://www.elianasofia.com				My 6 month old Eliana Sofia was diagnoised last month with brian cancer. The dr's think is Ependymoma.
	Santa Rosa, Ca				Kate Burke 707-292-6459				5 Year stage 4 GBM survivor!
	Scappoose, CA				Melissa Solomon 503 543-5313
	Sherman Oaks, CA				Gianina Zeller 323-868-8737
	Studio City, CA				Carrie Skane 323-806-4772				In honor of my mother, Charlotte, who was diagnosed with a Glioblastoma Multiforme brain tumor in April of 2009 and is still fighting the fight!
	Thousand Oaks, CA				Megan Donohue 805-390-4725				I became aware of this organization through the American Idol website due to the contestant David Cook. He won the season and his fans are joining in the fight to raise awareness about brain cancer. David's brother is suffering from brain cancer.
	Weaverville, CA				Karen Carrington 530-623-6239
	Woodland Hills, CA				Gary Potikyan 000-000-0000 http://www.oncogenetics.org
	, California				Kevin Hughes 000-000-0000
	Galt, California				Gina Winchell 916-525-5505				My son has a Oligodendroglioma brain tumor. He is 33 and has had surgery and radiation, however, the doctors were not able to get all of the growth. I am interested in becoming involved in the area.
	San Jose, California				TRINITY PORTRUM 8318012641				I had part of a brain tumor removed in feb. I will have more of the tumor removed in July! I think this is an amazing site! Let's keep the knowledge coming! ;) Trinity Ann Portrum
	Andover, CT				Kim Lachut 860-742-5682				I lost my dad to a brain tumor 6 years ago and have been hosting a fundraising walk once a year ever since. Through our Sharing Hope, Walk the Walk Talk the Talk we have managed to raise over $75000 for ABTA. This year's walk will be on Sunday June 28th. More information on our fundraiser can be found at http://members.cox.net/sharinghope/
	Enfield, CT				Carina Shaw 860-749-0194				I am the mother of a 2yo son with JPA they did a 98% resection 2 months ago and the 2% that was left has more than doubled in size. His tumor is now the size of a large olive and unable to be completely removed because it is against the optic ciasm and the left optical nerve. We have recently begun weekly Chemo treatment.
	Storrs, CT				Gaston Hernandez 860-518-0606 http://www.math.uconn.edu/~hernandez				Thank you for your efforts. We urgently need to joint or consolidate all Brain Tumor organizations into a big, large, unified, one.
	Middletown, DE				Lulu Calbazana 302-378-3804 http://www.caringbridge.org/visit/oliviacalbazana				My 3 year old was diagnosed on Black Friday 2008 with Medulloblastoma. She has endured surgery, 30 rounds of radiation, and 3 rounds of chemo so far. She is the toughest person I know even at 31 pounds.
	Newark, De				Raymond Baum 609-805-8655
	Deland, FL				Jan Hevner
	Green Cove Springs, Fl				violet montgomery 904-284-4743				My husband passed away in 2007 from a grade IV GBM brain tumor he was only 39. It is so important to make awareness about this terrible diease to try and find a cure so no one else has to suffer with this.
	Indian Rocks Beach, FL				Cathy Hall 727-743/8518
	Lake Wales, FL				Miranda Appleton 8635297630
	North Port, FL				Edie Pavonarius 941-426-4440				I am in no position to donate any money at this time (I am on SSD)...but I will raise awareness and wear my ribbon proudly. I was diagnosed a year ago with a brain tumor. At the time they said it was not cancerous and I am supposed to keep checking it evey 6 months, but I am scared as hell. Keep up the good work, and I will look for some good recipies.
	Oviedo, FL				Heather Lancaster 954 465 3979				I just recently lost a dear friend of mine to a brain tumor. It has hit me really hard. And I would love to help raise awareness for this cause.
	Panama city, fl				shawn howard 850-624-3406				My daughter was dx on 4/08 with a tumor in her Brain stem.
	Port Orange, FL				Terry Naszcyniec 386-304-5601				Currently recovering from a successful Brain Tumor surgery (benign meningioma removed 11-26-08).
	Riverview, FL				Donna Hall 813-481-0663
	SUNRISE, FL				ONEIDA POSY 9547426513
	Tallahassee, Fl				Cheryl Davis 850-222-7073
	Brunswick, GA				Warren Merritt				Hi everyone, My name is Warren and I'd like to share some of my experience with GBM, with any one interested in hearing about it. Iwas diagnosed and had my first resection (surgery), June 6rh 2003. That tumor was about the size of a jumbo egg and located in my right parietal lobe. I started radiation about two weeks later after the effects of the glial wafers wore down . There is much more I'd like to say but I'm not sure if this is the correct forum? please let me know and I'llget it in for you. BTW I've had two recurances, used Temodar and accutane. and am now back on temodar. Ilike to joke that I live my life eight weeks at a time because that is the interval between my trips to the Mayo Clinic in Jacksonville, FL. I'm due again Friday! stay tuned and I'll update you later. provided I'm not notified that I'm in the wrong place Must go nod and get readyto go to Jax. God Bless you all, Warren
	Savannah, GA				Barbara McQueeney 9129258471 http://www.threadsofgray.etsy.com				After all the publicity of pink ribbons for October, I was reminded of how I want to make Gray the new pink, and stumbled across your site! Hopefully together we can start a gray ribbon revolution!
	Sugar Hill, GA				Jeff Shekey 7703544667
	Acworth, Georgia				Dawn Bailey 7703567712
	Atlanta, Georgia				Christine Overrocker 404-456-8903
	Augusta, Georgia				Katelyn Gibbs 706-825-9293				My mother recently passed away just after Christmas of oligodendroglioma brain tumor(s). She battled this awful sickness for 13 years undergoing 2 surgeries, radiation, multiple chemotherapies and a hard struggle at the end. She was a miracle and the sweetest angel anyone had ever had the pleasure of meeting. Over 2thousand people came to her visitation and funeral. I just want to give back to what she fought and try and find a cure for all the innocent victims of this atrocious disease. It is such a gift to see so many great people fighting for a cure. " There is nothing stronger than the heart of a volunteer." Thank you all!
	Lawrenceville, Georgia